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See Photo Essay on Renascer
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How to Engage Medical Staff
Here's how to go about getting medical staff to support a Renascer-type program in their hospital and become part of the referral team:
- Talk to all levels of staff, and be persistent.
Hospital staff generally tend to be untrusting of any initiative involving their patients that comes from outside the public hospital system. Many may feel that a private program will interfere with their work, and expose the hospital and staff to scrutiny. As Dr. Odilon Arrantes, Pediatrics head of Lagoa Hospital explains, "A program like this points out the shortfalls of the care being provided. This can, and does, cause resistance."
Cordeiro recommends starting by talking to the director of the hospital and the head of Pediatrics. Explain that, by preventing patient readmission, a program run along the lines of Renascer will actually work toward the overall effectiveness of the hospital's medical services, maximizing their investment. Explain that the program complements, rather than substitutes, hospital care.
Hold orientation sessions with the health professionals that answer the question that gnaws at many hospital professionals: What happens after I discharge this child?
- Refer to success stories of the model.
To overcome skepticism, be sure to give examples of successful interventions on the part of hospital staff. According to Cordeiro, the importance of Renascer's visibility is that it helps other organizations gain credibility.
Demonstrate how the model works in other hospitals and use impact figures. If possible, encourage the hospital director to talk to staff from other hospitals that are involved with Renascer programs.
- Involve staff directly.
Form a referral team made up of health professionals in the hospital where a Renascer-like program is being implemented.
Train the group on how to identify potential candidates for the program, and meet with them regularly. The hospital staff will need to dedicate a small amount of time to the program to meet and discuss cases with Renascer staff but the pay-off is improved patient care.
Don't forget to value the work of the doctors, nurses and other staff. You are on their side. You are filling a gap in the system, not questioning the quality of the service they provide as health professionals.
- Continue to show the model works
Once your foot is in the door, continue to highlight to the hospital staff how this model can be successful. Register feedback from the mothers and other family members and share this with the hospital staff. Once the health professionals 'hear' and 'see' families benefiting, your convincing is done.
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How to Entice Volunteers
- Value time and commitment. Cordeiro believes that everyone from the community has something of value to contribute: a journalist may be able to give the right thrust to Renascer's quarterly newsletter; an accountant's expertise can be utilized in double-checking the books. But she also realized that there are many people who do not have a diploma or certification for a certain job but want to help. Cordeiro tapped into a growing middle and upper class, particularly women, in Rio who either worked in jobs they were unsatisfied with, or were unemployed because they had never formally studied a specific field. Some others were retired women, ready to give of themselves to a worthwhile project. They had the time and the inclination, and through orientations and training, Renascer, in return, gave meaning and value to their time.
- Create opportunities for learning and growth. Promote an environment of mutual respect between volunteers and benefiting families. The volunteer is giving her time, but, in exchange, has the privilege of hearing the stories of these mothers, and learning from them. "These mothers are warriors, most of them. They are inspirations and the volunteers learn a lot from them," says Cordeiro.
By training the volunteers to effectively intervene to help these families, Renascer is showing that you don't need to be a health professional to improve the health of a poor family. Training sessions and regular volunteer meetings at Renascer reinforce this philosophy of mutual respect between volunteers and families. Volunteers who show condescending attitudes are "fired."
- Be transparent and document everything. Cordeiro says that the two things that motivate volunteers are transparency and impact. "Let them see what is being done. If you show impact, no matter how small, you will have volunteers", Cordeiro explains.
Renascer documents everything. The mothers sign "receipts" for each food basket, medicine or water filter they receive. "When you are just starting out," Cordeiro says, "you may not have much to give the families but even if it seems small, have the mothers sign for them and you have something to show your volunteers and supporters."
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How to Keep People Motivated (Staff, Volunteers, Beneficiaries)
Applaud small things. Cordeiro believes that small actions matter. She recalls times "at the beginning" when Renascer's three-member volunteer staff stopped to clap when a phone call generated a donation of a few cans of milk.
Celebrating each moment of the institution is fundamental. What can break an institution is non-recognition and apathy. From the staff fundraiser who brings in grants in the tens of thousands, to the volunteer who organizes Renascer's photo archive, Cordeiro sees the value in everyone who contributes to the organization. "Nothing and nobody is too little. The hours of work that go into organizing the photos at Renascer cannot be taken for granted. It is not merely a small archive; it is Susie Hartley Viera, who's spent six years of volunteering at Renascer with all her energy to create the best archive that Renascer has ever had."
Democratize information. Give staff and volunteers access to folders and archives to "check up" on the organization. Volunteers are the windows to the institution. When they know that the organization is ethical and dedicated, they will tell others. When they see that it is misusing funds and misleading people, they will tell others too.
The founder must be an example. Cordeiro believes that the energy and example that the founder sets is key to the success of any endeavor. In starting a Renascer program, the founder must be entrepreneurial and motivate the whole team with her/his energy.
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How to Raise Funds for Your Program
- Have a membership-based organization.
According to Cordeiro, many members all playing small amounts are key to creating a local base of support for the organization's activities. Today, Renascer has around 1,200 members who contribute financially to the organization on a regular basis.
Many members also serve as volunteers, and contribute to a range of activities, from working directly with the mothers and giving informational talks on important themes, to helping organize a high-profile fundraising event.
Members receive a regular newsletter that not only provides information on the cases and progress of the organization, but also reports on all funds that are received and spent. "You can start out small," Cordeiro says. "If you start out like I did with 10 members contributing half of whom were my own family! you still need to tell these 10 members how you are spending their money."
An important part of reporting is highlighting success stories. Renascer's newsletter includes a "family case" section. "It's like a weight-loss story. 'I was like this, I did this and now I'm like this.' It tells the story of how a family came in and how it left and all it received in between. When you read this part, you know why Renascer exists," emphasizes Cordeiro.
- Link the families with sponsors.
Currently 90% of the families being served by Renascer have their basic food and medicines covered by family sponsors. "But to make it work, you need to have someone really skilled to run the sponsorship program," Cordeiro cautions. "They need to be attentive and transparent to the sponsors. Personal attention and regular reporting is important. Their desire to know where their support is going is only natural."
- Use a broad base of support to attract the big fish.
As Cordeiro says, having a large number of members and sponsors will have a multiplier effect. Good news travels fast and if companies know you are serious, they will come to you. By having a large number of people in your city directly involved in supporting the organization, many doors will open easily because a secretary or the daughter of the president is a sponsor.
- Let potential supporters feel the energy.
Cordeiro has a tactic for introducing potential donors to Renascer. First, she takes them to the volunteer room when the mothers are meeting with their volunteer caseworkers. This allows them to feel the energy passing between them, and they experience first-hand how everything is tied together. Next, she asks a mother coming in or leaving the building to talk about the program and what it means to her and her family. Only then does she take the potential donor to a meeting room to explain Renascer and offer a space for asking questions.
Cordeiro cautions that it is important to be clear about where the needs of the organization lie. She reports that a high 97% of the potential donors who approached Renascer have contributed.
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How to Involve the Families of Patients
- Respect the parent.
When an AIDS afflicted woman arrives at Renascer with five children in tow, three of whom have AIDS, show respect for the mother of the child (it's almost always the mother, and not the father, who bears responsibility for the children). You can tell right away that the mother is a fighter; otherwise she wouldn't be there. Volunteers take special care to thank the women for sharing their stories.
Cordeiro recognizes the importance of respecting the mother's intelligence and helping her improve her access to information. At Renascer, they hold lectures and information sessions on key issues affecting the family's health and well-being. Before the afternoon meeting between mothers and their caseworkers commence, Renascer invites the mothers scheduled for that day to come in early to attend an information session. Topics include domestic violence, nutrition, school involvement, etc.
In a feedback questionnaire, mothers listed the following as the two most important contributions made by Renascer: improved health of their child and, the information sessions.
- Have humility.
"When we talk about restructuring the family, we are not talking an overhaul of what they have already built," Cordeiro says. "We provide interventions in accordance with what the family needs and wants." Renascer volunteers start with the question: "What are your dreams for the future?"
- Be firm.
In rare cases, a family is "dropped-out" of Renascer, if a mother displays a lack of commitment. Renascer provides a structure for supporting the family after their child is discharged. The monthly meetings with the caseworker are key to working with the family toward the goals set together in the Family Action Plan. If the mother misses the meeting three times without calling ahead, she is given a warning. If she continues to play truant, she is pulled out of the program. Renascer relies on a partnership relationship with the family and has clear and firm rules.
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Vera Cordeiro's Effective Management Tips
Give due recognition to people working with you. Make it a point to show your appreciation to everyone in your organization, up and down the line.
Designate a leader in every department be it fundraising, direct service, or administration who is responsible for planned outcomes. This is doubly important in a volunteer-led organization, where a "boss figure" goes a long way in ensuring accountability.
If a person does not fit the needs of the institution, it is better to be open and let them go than to keep someone on who will not contribute in the necessary way. Desist from keeping people on as staff out of kindness.
Democratize information and make access to information easy. Information should never be the prerogative of a chosen few.
From time to time, take people out of their daily functions. Hold workshops that help reinforce their work but let them take a break and look in from a different angle. Everyone wants to think, be creative and get out of the day-to-day.
At meetings, form circles. Hold meetings once a month with the whole staff. Sit around in a circle so that everyone can look each other in the eye.
Never work only with volunteers. While volunteers are key to Renascer, for example, permanent, professional staff are fundamental to any organization.
Keep focused, and don't forget your mission. Paint it on the wall of the office and be constantly aware it's up there.
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"Sending these kids home was akin to passing a death sentence on them"
- Vera Cordeiro
Cordeiro saw that patients had an urgent need for post-hospital care after their treatment ended and they were sent home to walk the last mile to a full recovery. She noticed that convalescence often comes to a premature halt or is even reversed for a variety of reasons, ranging from the high cost of medicines, to the inability to drum up bus fares to get to a follow-up appointment.
Treating Social and Economic Factors
"I realized that if we don't treat a person as a whole, we simply won't be efficient: not on the diagnosis, not on the treatment, and not on the recovery," she said.
The problem hits children especially hard. "If we are talking about adults, that's one thing, but a sick child has a profound impact on the whole family," Cordeiro said. "Kids often require full-time care, and large investments of time and money. When a family doesn't have the basics to live on, what happens to this child?"
Cordeiro was not alone among her colleagues in the pediatric section in feeling reluctant to discharge her patients. "Sending these kids home was akin to passing a death sentence on them," she recalls.
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Photo by Claire Fallender
Sign in Lagoa Hospital's pediatric section notes that "This child and her family is assisted by the organization Renascer."
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She was determined to do something to help these children, so Cordeiro organized hospital staff, volunteers and supporters to create a program that treats the social and economic factors affecting patients' treatment. This is how Saúde-Criança Renascer (meaning "children's health reborn") was founded in 1991 to help ensure the right to health for discharged patients and their financially strapped families.
Knowing the People You Serve
Thirteen years later, it's a Monday morning and Renascer's team of social workers are making the two-hour journey to Cristiane de Luna's
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Photo by Claire Fallender
Cristiane de Luna at home
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house on the outskirts of Rio de Janeiro. De Luna's case had been referred to Renascer by members of the medical staff at Lagoa Hospital who are treating her son, Luiz.
De Luna's one-room shack consists of pieces of scrap wood nailed together. The dirt floor is covered with rugs that are damp from the periodic flooding of the surrounding swamp. "A sick child simply cannot come back to an environment like this. He will only get worse," observes Marcia Barros, Renascer's most senior social worker. There's no running water, no refrigerator, and the mini-stove lies idle because there's no money to buy propane.
De Luna's few possessions are arranged impeccably. Clothes are folded in neat piles and the family's four cups and two plates are organized symmetrically on the night table.
De Luna herself is immaculately turned out, with polished nails, brushed-back hair and dangly earrings. "This is why the home visit's so
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Photo by Claire Fallender
Cristiane de Luna
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important," Barros explains. "Most people in the hospital, even Renascer volunteers, might think she's not that badly off. But when you come here, you see. Despite all this, she has self-esteem and it shows in how she presents herself."
Barros sits with de Luna and asks questions as her assistant takes notes on Renascer's visit form. "How is your son doing?" "Does your husband work?" De Luna, 26, is illiterate and has four children. Her husband earns $30 per month on average from irregular jobs, which is less than half the country's minimum wage and well below the poverty line.
Six-month-old Luiz has been in hospital since he was born. "He was bleeding from the mouth, the stomach," she explains. "But with
medication, he's doing much better. He's almost sitting up now and smiles a lot." Luiz has a chronic blood disease and when released will require special care and weekly injections at home. The medicines alone may cost up to $100 per month.
Barros prescribes a water filter, a tank of propane and extra transportation vouchers for de Luna's husband who's been unable to visit his
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Photo by Claire Fallender
Cristiane de Luna and Luiz
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son as often as he'd have liked. "Normally, Renascer doesn't provide things like propane since it's a temporary fix," Barros says. "But when the family situation is this precarious, we make a one-time donation until the family income increases." De Luna has been unable to make hot food for more than a month.
Barros jots down instructions for the volunteer staff at Renascer to give de Luna priority in housing improvements, psychological attention, and a placement in Renascer's handicraft training course so that she can start earning some money. "We say that the hospital cures the illness, but Renascer cures the social ills," she says.
Getting Families on Their Feet
De Luna is just one of 220 families that are served by Renascer now, and each is at a different stage of improving its members' health and economic security. It takes roughly 18 months to get a destitute family on its feet, according to Cordeiro. "On its feet" means acquiring the basics income, housing, education, and documentation in order to care for a sick child and the family as a whole.
"Our goal isn't to make poor families rich," Cordeiro said. "We're taking families who are living in misery and providing them with tools
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Photo by Claire Fallender
Renascer's team of social workers surveys the living conditions of a family that is newly enrolled in the program
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and support networks to take care of their future health and well-being."
How does this happen? The first step occurs when a multi-disciplinary "referral team" at the Lagoa Hospital oriented by Renascer determines that a patient's family is "high-risk" and living in extreme poverty. Typically, the team is made up of doctors, nurses, psychologists and social workers who volunteer their time to receive orientation and interact with Renascer's staff in order to refer the neediest families to the program.
Renascer's hospital-based volunteer staff then involves the children and their mothers in recreational activities so that the hospital setting becomes a place for interaction and support. Mothers learn embroidery and other crafts in a workshop setting so they can generate extra income. Perhaps more important, mothers instinctively gravitate toward each other, forming support groups that help them better handle the long days and nights spent in a hospital chair, ministering to their children.
Photo by Claire Fallender
Mothers make handicraft baskets out of newspapers to generate income while waiting outside the Renascer building for their monthly meeting
"Very few of the children have fathers in the picture," notes Manuela Sollero Paulo, director of fundraising at Renascer. "And when a crisis like this hits when the child is in the hospital the father just disappears. The mother ends up handling the situation all alone."
After a child is discharged from the hospital, the referral team urges the child's mother to visit Renascer's headquarters, located a short walk from the hospital. At Renascer, a trained volunteer interviews the mother about her family's situation.
A professional social worker then makes a home visit to expand the original "diagnosis" and report back to the caseworker. Together with the mother, the social worker and the volunteer caseworker create a Family Action Plan that is built around what the mother wants for the family.
Once a month, the mother is scheduled for a meeting with her caseworker to discuss her family's progress with the different elements outlined in the plan, the first of which is the health of the sick child. Other elements include job training, getting the family members' personal documents in order, and making housing improvements. Through a partnership with a construction company, Renascer helps families fix roofing, put in floors, or install a bathroom to make the home environment more sanitary and healthy.
Photo by Claire Fallender
Cristiane de Luna meets with Renascer social workers during a routine site visit
Renascer's professional training courses have helped more than 1,500 mothers gain the ability to generate income, which is key to a family's sustainability. Because round-the-clock care for a sick child makes it difficult for mothers to hold full-time jobs, the courses encourage entrepreneurship and help mothers find income generating activities within their community.
To help mothers get started, Renascer has provided more than 1,000 "start-up" work kits. The Family Plan also pays close attention to the other children in the family because a seriously ill child typically draws all the attention and resources of the family, and the needs of the other siblings go unnoticed. The bottom line is to give families the means to work their way out of extreme poverty.
How to Start a "Re"
To date, Renascer has helped more than 1,900 families get on their feet, directly benefiting some 10,000 individuals. As a model for action, Renascer's impact goes much further. In the last decade, 13 organizations that emulate Renascer have sprouted up alongside public hospitals in three Brazilian states, benefiting more than 20,000 people.
As Renascer's program evolved, word spread about how it dramatically reduced the hospital re-admission rate at Lagoa by improving the health of poor families. When the media finally caught up with the "rebel doctor" who was taking health care beyond the hospital walls, Cordeiro took advantage of her visibility by challenging others to copy her program. Soon she was receiving phone calls and visits from others seeking to understand the how-tos of setting up such an organization.
1993 saw the birth of Revivir ("Re-live"), Renascer's first "sister" organization. In 1995, three more "Re's" came to life, each one taking on a name that starts with "Re," which means "anew."
Seeing the power of replicating Renascer's model, Cordeiro made it easier for others to follow in her footsteps by designing a step-by-step manual with free consulting help from the premier management consulting firm McKinsey & Company. Cordeiro has formalized her "Children's Health" network of organizations that are adopting the Renascer model so members can gain some financial start-up support, visibility and staff training. A testament to the replicability of the model is the fact that one of the mothers whose child's life was turned around by Renascer thus transforming the mother's life became the founder of the twelfth "Re" in 2001.
There are numerous testimonies from children and families who say that Renascer has offered them life and hope. Hospital staff say they benefit too. Odilon Arrantes, head of Pediatrics at the Lagoa Hospital describes the impact of Renascer: "Before Renascer, we doctors weren't really happy with the way things were. Our young patients would get better and go home, only to return to the same environment that contributed to the health problem in the first place." Arrantes estimates that readmittance rates have plummeted by 60 percent since Renascer's program was implemented.
Photo by Claire Fallender
Cristiane de Luna shows towels she is selling after learning embroidery and stenciling during Renascer-run activities for mothers in the hospital
Luiz is due to be released soon, and Renascer will provide support to his mother so that his medical treatment continues beyond the hospital walls. "My dream," de Luna says, "is to have a nice place for Luiz and my family where we can be healthy and happy and I can take care of them."
She can count on help from Renascer to make that dream come true.
Contact:
Vera Cordeiro
Associação Saúde Criança Renascer
Rua Jardim Botânico, 414
Parque Lage - Jardim Botânico
22461-000 Rio de Janeiro - RJ - Brasil
Tel/Fax: (55) (21) 2286-9654 or (55) (21) 2286-9988
Email: renascer@saude-crianca.org.br
Web site: www.saude-crianca.org.br
Claire Fallender is an international development consultant who has been a member of Ashoka's team for six years. She is currently based in Rio de Janeiro and focuses on developing youth social entrepreneurship programs in Brazil.
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